Feeling grateful for helping to spread awareness of ME/CFS:
On the day that celebrates the birth of Florence Nightingale 196 years ago, it’s also ME/CFS Awareness Day.
The founder of modern nursing was said to have suffered from Chronic Fatigue Syndrome (also known as myalgic encephalomyelitis) and the condition, which affects over 250,000 in the UK and around a million in the US, is still so misunderstood and difficult to understand nearly 200 years on.
Having lived with this condition for over three years now, I’m still fumbling my way around the causes and working out what’s best for my own personal recovery journey.
It’s a very long, winding and bumpy road, but feel I’m slowly improving day-by-day, step-by-step, and I’m absolutely confident I’ll get there – however long it takes.
While I’m still trying to get my head around how to describe my own personal experiences of this debilitating condition, here’s a few of my favourite clips and articles which are helping to spread awareness during ME/CFS Awareness Week:
1. Action for ME have released a 3 minute awareness raising video which talks about what ME is, the challenges people with ME face, and the science behind the illness. Watch it here:
2. The Huffington Post wrote a great feature last year on the ’10 important things people with ME want you to know’. Read about it here.
3. The much-loved actress Martine McCutcheon appeared on a daytime telly show to talk about her experiences with ME and explains it brilliantly. Watch it here.
4. The Guardian asks if CFS is finally being taken seriously. Read about it here.